Why create a website for attheedgeofscience?
After having successfully turned my life-changing situation around, and also after having participated in a number of dedicated advocacy efforts over the years, I decided it was time to chronicle the events surrounding that period of time and "immortalize" it all via a website.
Who are you and what do you do for a living?
I am a pretty average person with a not-so-average story. For the same reason, I am not sure how much it matters who I am or what I do. The important thing for me was to take the time to reflect on a few special years of my life and create a website as a kind of monument. In addition, I founded a small informal advocacy group where we remain involved in the promotion of tinnitus research. I will most likely engage in early stage initiatives for a number of years to come ‒ permitted that the relevant occasions present themselves, of course!
As for my personal details: I am a Dane who has spent more than a decade living abroad (Switzerland and Germany). Age-wise, I am in my early 40s and career-wise, I have a long background working for large corporations (finance-related work).
Which particular topics in medicine interest you?
In relation to tinnitus, I continue to follow the pharma company developments within the field of inner ear disorders, studies on prevalence statistics, niche research involving actual treatments with a curative aspect (read: reduction of tinnitus symptoms), and high-quality advocacy efforts. The rationale behind my interests has to do with the progression of the clinical trial landscape as well as what may be a latent tinnitus epidemic among the younger part of the population (likely driven by recreational noise exposure). There is some variability amongst the prevalence statistics on tinnitus and so it is not clear if there is an emerging problem and how big it is. But, so-called "hidden hearing loss" is believed to be on the increase (stated by Mr. Weber, CEO of Otonomy Inc) and without any treatment for tinnitus or the ability to hear conversations clearly with background noise present (e.g. in an office setting), this trend is particularly worrisome. And especially so, considering the low priority on interventions there is on the part of authorities (in terms of prevention and treatment). This situation has all the necessary elements for it to escalate out-of-control and become a problem not just for the individual, but also for society.
If I have questions, how do I contact you?
My website should answer most questions ‒ I certainly took the time to document all the facts. But for any remaining questions, I can be reached at: firstname.lastname@example.org